‘Selfish” Chapter 165
- 2 days ago
- 2 min read
Can we TAWK over here? 👈 (said in my NY accent)
I recently received this text.
Hi David! Curious about your thoughts on the Eric Dane documentary on Netflix . Have you seen it?
My answer : I just watched it and have mixed feelings. This is a different fight for each of us. Some tap out early, others wait on the ref (God) to call it.
I liked the message to his daughters, but he didn’t fight. He had money and fame, but we are rich with FAITH and FAMILY.
I do appreciate what he did to help and honor his decision. Maybe I’m the selfish one for not tapping out.
As I keep reflecting on my answer, I feel I feel compelled to elaborate.
Am I being selfish for not giving up? I keep trusting God for a cure. Like the person digging for gold thinking, if I just dig one more foot, I just keep pushing for one more day. At this point, I can do very little for myself. Does that make me selfish to ask my family to sacrifice for me because I want one more day? What if a cure is found tomorrow and I give up today?
As I stated before, I believe God put me on a mission to teach others and advocate for ALS, but I might only touch 500 amazing people. On the other hand, Eric Dane did great work and touched millions before his work was done. It appears to me from the documentary that he did not have God in his life and was a quitter. I believe it is much more impactful to show the late stages of ALS and be vulnerable, and he quit too soon.
This disease is too rare to sit back and not do anything, but like I said before, ALS is
very personal. I respect everyone's choices... I just want more.
Love and Blessings
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You better NOT!!! Miss you, Love you. Thank you for everything!
David continue to be the amazing advocate you are . Your humor, knowledge and great personality lightens the world and makes us all better for it!
You have not only helped PALS , you have helped their loved ones, friends, and simply anyone we come across living with it.
Keep fighting the good fight 💙
In light,, love and Gratitude 🙏🏻
Victoria
I'm glad you have God in your life and that you haven't quit. Also, maybe looking at this from your family's point of view: we want you for one more day.
Boomer and I have a friend in the neighborhood who was just diagnosed with ALS two weeks ago. I sent him the link to your blog. I hope he will read it, as I think he will be encouraged by your grace, positive outlook, and courage in the face of this evil disease. He has been living with stage 4 lung cancer for several years now and was doing so well. The poor guy certainly has had his share of struggles. I pray for him, as I do…
I totally agree with you, David! Apart from the strength the Lord grants with each day, each moment, and the hope only He gives, the trials of this life would be impossible to face alone. Thank you for always sharing and for continuing the fight with the hope that indeed a breakthrough in treatment or a cure may be found!
I am reminded of my husband's weighty decision on whether or not to get a trach - to not get it meant impending death while to get it meant he could come home and still spend time enjoying his "comfort cat", seeing his sons and grandchildren, and watching every movie ever made. He was tired of the fight and the setbacks, and part of him was ready for this to be over. The other part wasn't ready to give up just yet. His decision to get the trach gave him (and us) two more years of life and love. Everyone's journey - and their decisions - are very personal.