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Current ALSFRS-R 2
Updates From David
1 day ago3 min read
“Merry Christmas” Chapter 111
I love the holiday season - starting with Thanksgiving and all the way through to New Year’s. People in general seem happier during this...
Dec 164 min read
“AI Gave Me My Voice Back” Chapter 110
Two years ago was the last time anyone heard my voice coming out of my own mouth, and it’s been even longer - another 6 months, in fact -...
Dec 91 min read
No Post
Due technical laziness there will be no post this week. I am always in need of topics, so please feel free to drop a suggestion. Have a...
Dec 23 min read
“ALS Is So Drooling” Chapter 109
There are many reasons a person gets ALS, but the disease puts us all into two groups: Bulbar (Upper Motor Neuron Disease) which starts...
Nov 253 min read
“ALS Eyes, There Watching You“ Chapter 108
Slowly, ALS continues to eat the nerves away. Unable to fulfill its unsatiable hunger, the disease reaches higher and higher, leaving me...
Nov 183 min read
“Melting Away” Chapter 107
As I sit here every day watching the muscles melt away from my body, all I can see is destruction of all the work I did throughout my...
Nov 113 min read
“The Walking Dead” Chapter 106
The other day I was working on a project and was asked to provide a verification letter from a medical professional verifying I had ALS....
Nov 48 min read
“My Van Broke Down 😱 Now What “ Chapter 105
The year was December 1998 and Laura and I were driving from Killeen, TX to San Jose, CA with our four kids, a cat, and six suitcases. We...
Oct 285 min read
“Cut And A Shave “ Chapter 104
Before I joined the Army, I only got a haircut a couple of times a year... maybe. To be honest, I couldn’t tell you specifically where I...
Oct 214 min read
“Fading Away “ Chapter 103
“I’m sorry can you repeat that.” “Please speak louder.” “Please raise the volume.” These were all comments I used often during the day...
Oct 143 min read
“Walking For ALS” Chapter 102
It was the cool start of a beautiful fall day as the ALS Organization staff and volunteers prepared for the 1,000 + participants soon to...
Oct 74 min read
“ALS As Rare As A DeLorean?” Chapter 101
Have you ever noticed that when you are looking for something specific, it always seems to be as hard as finding a DeLorean? However,...
Sep 305 min read
“Somebody Please Change The Song“ Chapter 💯
Let me start with this... Welcome to Post # 💯! I have been thinking about writing a celebratory post for the last month. I'd even...
Sep 234 min read
“Self Care To Help Care” Chapter 99
Do you remember the song “Head and Shoulders, Knees and Toes?” 🎶 Songs like that one helped us learn how to brush our teeth, comb our...
Sep 165 min read
“2, A Reflection" Chapter 98
"Do it for your children,” Laura said when I asked her who would want to read my blog. It was August 2022 and I was sitting in the...
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