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Current ALSFRS-R 2
Updates From David


“The Right To Die” Chapter 128
“I brought you into this world and I’ll take you out.” Who hasn’t been told that? Sometimes I wonder what the world would look like if...
3 days ago4 min read


“The Differences of ALS” Chapter 127
The other day I received a comment from a reader who wrote ALS was a “snowflake” disease. I sat back in my chair, no wait, I’m always...
Apr 143 min read


“Frustrating” Chapter 126
The other day I saw a meme and a gentleman said “We have a thousand problems until we are sick, then we only have one.” I thought about...
Apr 74 min read


“Old Dog, New ALS Tricks “ Chapter 125
I've always considered myself a bit of a romantic. Every year for our anniversary, I “try” to surprise Laura with something special....
Mar 313 min read


“Living With My Trachea” Chapter 124
“You have a high amount of Co2 in your body and your body is not removing it properly. For you, the best way to get rid of it is to use a...
Mar 244 min read


“ ALS Changed My Life” Chapter 123
Posted on 14 March 2025 Have you ever had something happen to you that was life changing? Maybe you crashed a car and survived, beat...
Mar 173 min read


“How Many Sticks 💉💉💉💉” Chapter 122
We all remember how many licks it takes to get to the center of a “Tootsie Roll” Pop. Three! Well, I wish it took only three sticks to...
Mar 103 min read


“End Of Life Decision” Chapter 121
“When do want to die?" That’s one hell of a question to be asked on this journey. How many people are asked that question? In my very...
Mar 33 min read


“Support, Is It Different Than Caregiving?” Chapter 120
When I started my ALS journey, I didn’t realize how much support I would need. A caregiver is someone who helps another person meet...
Feb 243 min read


“Flat David “ Chapter 119
As I was looking through Facebook, I came across a picture of a boy holding up a “Flat Stanley." “Flat Stanley" refers to a young boy...
Feb 173 min read


“Time For A Tracheostomy Tube Change.” Chapter 118
When you own a home there are certain seasonal things you must do ever year depending on where you live. Most folks follow Daylight...
Feb 103 min read


“Nursing ALS” Chapter 117
There comes a point when every PALS will need help. There are several choices you can make. When I first started showing symptoms, my...
Feb 34 min read


“ALS Things That Make You Say Hmmm!” Chapter 116
I like, no... I love being an ALS advocate and helping others understand this diagnosis. When faced with any disease, reading about it...
Jan 273 min read


“A Day Off From ALS” Chapter 115
Nobody can be “ON” every day. Most people work 40 hour weeks and many work more than 40. Before joining the Army, I worked with my dad as...
Jan 205 min read


“My ALS Mantra” Chapter 114
I AM STRONG ! I HAVE FAITH ! I AM HEALING ! Why do Athletes picture themselves performing their necessary task in their mind before the...
Jan 134 min read
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