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Current ALSFRS-R 2
Updates From David


18 hours ago3 min read
“End Of Life Decision” Chapter 121
“When do want to die?" That’s one hell of a question to be asked on this journey. How many people are asked that question? In my very...

Feb 243 min read
“Support, Is It Different Than Caregiving?” Chapter 120
When I started my ALS journey, I didn’t realize how much support I would need. A caregiver is someone who helps another person meet...

Feb 173 min read
“Flat David “ Chapter 119
As I was looking through Facebook, I came across a picture of a boy holding up a “Flat Stanley." “Flat Stanley" refers to a young boy...


Feb 103 min read
“Time For A Tracheostomy Tube Change.” Chapter 118
When you own a home there are certain seasonal things you must do ever year depending on where you live. Most folks follow Daylight...

Feb 34 min read
“Nursing ALS” Chapter 117
There comes a point when every PALS will need help. There are several choices you can make. When I first started showing symptoms, my...


Jan 273 min read
“ALS Things That Make You Say Hmmm!” Chapter 116
I like, no... I love being an ALS advocate and helping others understand this diagnosis. When faced with any disease, reading about it...


Jan 205 min read
“A Day Off From ALS” Chapter 115
Nobody can be “ON” every day. Most people work 40 hour weeks and many work more than 40. Before joining the Army, I worked with my dad as...


Jan 134 min read
“My ALS Mantra” Chapter 114
I AM STRONG ! I HAVE FAITH ! I AM HEALING ! Why do Athletes picture themselves performing their necessary task in their mind before the...


Jan 63 min read
“Palliative Care, What?" 😱 Chapter 113
“When you are ready, we are here to assist you with your transition.” Transition? WTF? This was one of the first things I was asked 2 1/2...


Dec 30, 20243 min read
‘My ALS Calendar” Chapter 112
As we close the chapter on another year and a new year begins, we often set our focus on new goals. Maybe you plan to eat better, save...


Dec 23, 20243 min read
“Merry Christmas” Chapter 111
I love the holiday season - starting with Thanksgiving and all the way through to New Year’s. People in general seem happier during this...


Dec 16, 20244 min read
“AI Gave Me My Voice Back” Chapter 110
Two years ago was the last time anyone heard my voice coming out of my own mouth, and it’s been even longer - another 6 months, in fact -...
Dec 9, 20241 min read
No Post
Due technical laziness there will be no post this week. I am always in need of topics, so please feel free to drop a suggestion. Have a...


Dec 2, 20243 min read
“ALS Is So Drooling” Chapter 109
There are many reasons a person gets ALS, but the disease puts us all into two groups: Bulbar (Upper Motor Neuron Disease) which starts...


Nov 25, 20243 min read
“ALS Eyes, There Watching You“ Chapter 108
Slowly, ALS continues to eat the nerves away. Unable to fulfill its unsatiable hunger, the disease reaches higher and higher, leaving me...
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