Updates From David

It was a sunny 66 degrees as hundreds of friends, family members, and caregivers gathered by the outdoor stage at the National Harbor. We all listened and cheered when our emcee, Paul Jeter, announced that we collectively raised over $400,000 for the 2025 Walk to Defeat ALS. The walk was originally scheduled for October 4 at the National Monument, as it had been every year before. However, the government shutdown closed the national parks as well. The ALS Association quickly

Have you ever plunged into a novel with your book club, emerging with a storm of questions about that shocking plot twist or lingering cliffhanger? The ensuing debates dissecting character motivations, speculating on endings, and exchanging personal takeaways are often the best part. But imagine bypassing the guesswork and directing those queries right to the author? That's the magic I bring to my book. When a book club contacts me for a meet-and-greet Q&A, we set up a virtua

When I first got my tracheostomy, one of my biggest fears was choking on mucus or having something go down my esophagus. I couldn’t imagine how horrifying that would be. I was afraid to shower and definitely avoided putting anything in my mouth. I would even panic during dental cleanings if my caregiver used too much water. After battling pneumonia twice and emerging victorious, I wasn’t looking for a trilogy. Over the years I have often dreamt of drinking a cup of coffee or

I wrote my first chapter on  11 September 2022, an introduction titled "I Have ALS, Now What?"   Now - as I write post 150 - I am amazed I made it this far. I am not talking about my living with ALS either... that’s the easy part and gives me something to write about. I’m talking about writing a post almost every Monday since. I want to thank you all for taking time to read it and respond. Some of you have been following me from day one, and others might have some catching up

When I started the process of going down the long road of ALS, the biggest issue for me was drooling like a dog. Like most PALS I tried...

Someone recently asked what keeps me motivated to keep living, instead of just letting go knowing you are going to die? My answer, “If...

Over the last few months I have been fixated on watching food eating challenges. Don’t laugh - I challenge you to watch a woman who’s 110...

I was going to write about something else this week, but then my wife Laura took a great video of my six month trach change and check up,...

I don’t know about you, but I really love when I get a text/email asking for help. Not spam or some other BS, but the kind of message...

The clock struck midnight and we moved into 2021. People were on the move again as we started to leave COVID behind us. I had been...

On the Fox 5 set I have always been one to volunteer. Helping others is a way I show my love, and being able to use skills that I learned...

Isn’t it amazing how God is always three steps ahead? When I started my journey with ALS and this blog my primary hope was to help others...

Are you a fiddler? Can’t seem to just relax while your mind races along? Maybe you are a multi-tasker? Before my ALS diagnosis, Laura...

Did I ever tell you how much I really dislike hospitals? This, of course, is only a relatively recent development over the past four...