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Current ALSFRS-R 2
Updates From David


“Past Or The Future“ Chapter 133
“Do you find yourself thinking more about the past, or the future?” I was asked this by a reader and thought it would be fun to answer....
3 days ago3 min read


“Catheter and ALS” Chapter 132
“I have to pee.” “Quick, get the urine bottle before it gets everywhere!” Does this sound familiar? When I started down this road, I...
May 264 min read


“Inspiration” Chapter 131
“ Is that Tuesdays with Morrie?” “Why yes it is, and it’s signed by the author, too!” If you have been keeping up with my previous posts,...
May 194 min read


“Why I Was Scared To Shower” Chapter 130
When you give a baby a bath for the first time, they are shocked and have no idea what is happening. The water washes over them and they...
May 53 min read


“I Can Hear Clearly Now” Chapter 129
Doesn’t it feel great when you find something you lost? I’m not speaking about your keys or wallet. Heck, you can buy a locator chip to...
Apr 283 min read


“The Right To Die” Chapter 128
“I brought you into this world and I’ll take you out.” Who hasn’t been told that? Sometimes I wonder what the world would look like if...
Apr 214 min read


“The Differences of ALS” Chapter 127
The other day I received a comment from a reader who wrote ALS was a “snowflake” disease. I sat back in my chair, no wait, I’m always...
Apr 143 min read


“Frustrating” Chapter 126
The other day I saw a meme and a gentleman said “We have a thousand problems until we are sick, then we only have one.” I thought about...
Apr 74 min read


“Old Dog, New ALS Tricks “ Chapter 125
I've always considered myself a bit of a romantic. Every year for our anniversary, I “try” to surprise Laura with something special....
Mar 313 min read


“Living With My Trachea” Chapter 124
“You have a high amount of Co2 in your body and your body is not removing it properly. For you, the best way to get rid of it is to use a...
Mar 244 min read


“ ALS Changed My Life” Chapter 123
Posted on 14 March 2025 Have you ever had something happen to you that was life changing? Maybe you crashed a car and survived, beat...
Mar 173 min read


“How Many Sticks 💉💉💉💉” Chapter 122
We all remember how many licks it takes to get to the center of a “Tootsie Roll” Pop. Three! Well, I wish it took only three sticks to...
Mar 103 min read


“End Of Life Decision” Chapter 121
“When do want to die?" That’s one hell of a question to be asked on this journey. How many people are asked that question? In my very...
Mar 33 min read


“Support, Is It Different Than Caregiving?” Chapter 120
When I started my ALS journey, I didn’t realize how much support I would need. A caregiver is someone who helps another person meet...
Feb 243 min read


“Flat David “ Chapter 119
As I was looking through Facebook, I came across a picture of a boy holding up a “Flat Stanley." “Flat Stanley" refers to a young boy...
Feb 173 min read
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