“Legacy Through Tradition” Chapter 15
We all have holiday memories and traditions. These traditions are passed down through the years to create foundational memories for your...
top of page
Current ALSFRS-R 2
Updates From David
Dec 12, 20227 min read
“Advocating For Your Life” Chapter 14
When I was first told I had ALS, I had to look it up. Amyotrophic lateral sclerosis (a-my-o-TROE-fik LAT-ur-ul skluh-ROE-sis), or ALS, is...
Dec 5, 20226 min read
“My Man Card” Chapter 13
Growing up, a boy is taught a certain set of “man rules” from his father certain that as men we continue to live by. On our 18th birthday...
Nov 28, 20227 min read
“Father of the Bride” Chapter 12
It's every father's dream to walk his daughter down the aisle. A father has three main responsibilities during a wedding (well... four if...
Nov 21, 20226 min read
A Day in the Life of Me "Chapter 11"
We all have images in our head of what a sick person looks like. Either through a TV show, personal experiences, or our own imagination. ...
Nov 14, 20225 min read
Working with ALS Chapter 10
When I first got sick I had a lot of people ask me to stop working and take time with family. My answer was there is nothing I am missing...
Nov 6, 20226 min read
“For The Good of Others” Chapter 9
I want to thank my "Brother from Another," Mike, for his love, support, and contribution to my blog by writing Chapter 9 for me this...
Oct 31, 20225 min read
"The Obituary" Chapter 8
What do you give a dying man? TIME! For years I have looked at news sources and seen obituaries like, “John Doe passed away. John was a...
Oct 24, 20226 min read
"Getting Ready" Chapter 7
pl June 2022 ALSFRS 37 Ask any Vet and they will tell you that at one time or another, the VA (Veterans Affairs) Health care system...
Oct 10, 20224 min read
"Why Me"? Chapter 5
You might be wondering if this blog is going to turn into a pity party. I think it very easily could have, but would you have really...
Sep 29, 20225 min read
"The Results Are In" Chapter 4
November 2021: I had another appointment with Doogie and his boss - a senior neurologist. This time, though, I went alone. We went over...
Sep 26, 20224 min read
"Time To Face The Truth" Chapter 3
I want to start this week off with some background as we move into the medical part of my ALS journey. From the time someone first begins...
Sep 18, 20224 min read
"The Hustler" Chapter 2
Did you l know I was a hustler? It started as young as I could remember. When I was 7 or 8 my older brother would tie me up to a chair...
Sep 11, 20222 min read
"Whistle, David" Chapter 1
It all started on 14 Aug 1967, there I was naked for the first time in in front of everyone without a care in the world. Oh wait! Wrong...
Sep 11, 20222 min read
"I Have ALS, Now What?" Introduction
The day I was told I had ALS I first cried, and then looked at what was next. Not knowing where to go I found myself looking on the Net...
bottom of page