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Current ALSFRS-R 2
Updates From David
Feb 264 min read
“The Little Things “ Chapter 69
Do you appreciate the little things? Or do you focus on the trophies on the wall? Beginning a little over a month ago, a bird started...
Feb 198 min read
“Ask Me Anything The Answers ” Chapter 68
I love that I'm still able to still help others. Just because I am living with ALS and can’t wipe my own ass doesn’t mean I am not...
Feb 124 min read
“A Dream Within A Dream…“ Chapter 67
Have you ever had a dream within a dream within a dream? I have been having a lot of dreams lately where I see myself moving my arms and...
Feb 91 min read
Ask Me Anything
At the bottom of my page I have a section where you can ask me anything. Because this may have been missed I am sending out this little...
Jan 294 min read
” I Need A Tracheostomy, But I’m Scared “ Chapter 66
When I first started having difficulty breathing, I trusted the doctors to tell me what to do. It was around June 2022 that my ALS was...
Jan 223 min read
“ Yeah, Here We Go!” Chapter 65
If you watched football this season or follow me on Facebook, you know the Dallas Quarterback pre-snap cadence includes the phrase “Yeah,...
Jan 154 min read
“PEG Or MIC-KEY “ Chapter 64
I was thinking of what to write this week when I realized I have written about using my feeding tube a little, but not enough to answer...
Jan 44 min read
“I Got A New Car “ Chapter 63
It feels great when you buy a new car, but when you drive it off the lot it has already started to depreciate. Then we drive the car home...
Dec 25, 20233 min read
Merry Christmas “ Chapter 62“
‘Twas the night before Christmas and all through the house, only the ventilator was stirring as PALS breathed through his mouth. The...
Dec 18, 20234 min read
“A Walk In My Shoes“ Chapter 61
It really bothers me when I miss a week blogging. It’s not because I don’t want to write, but sometimes I can’t think of a topic....
Dec 11, 20235 min read
“Snake Oil“ Chapter 60
Have you ever heard of the term snake oil? IAW Wikipedia, “Snake oil is a term used to describe deceptive marketing, health care fraud or...
Nov 27, 20234 min read
“ Bumps In The Road “ Chapter 59
Being a PALS who lives at home, you can expect some bumps in the road with steep learning curves. I'm sure even say a PALS in a medical...
Nov 20, 20231 min read
“A Caregiver Story“ Chapter 58”
If you know a caregiver then you also know they don’t have a lot of time to themselves. So asking them to do something outside of their...
Nov 13, 20234 min read
“Living in a Conscious Sedated World “ Chapter 57
Imagine being fully aware of your surroundings with the ability to feel everything and not able to communicate what you are feeling....
Nov 6, 20233 min read
“A Special Birthday“ Chapter 56
I was reading a post the other day and a PALS asked, “How can I show my appreciation and help my caregiver?” He further stated, “I used...
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