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Current ALSFRS-R 2
Updates From David


“Do What With My Feedings Tube?” Chapter 90
A PEG feeding tube insertion is the placement of a feeding tube through the skin and the stomach wall. It goes directly into the stomach....
Jul 22, 20243 min read


“I Needed A CT Scan, Do You?” Chapter 89
You may already know from reading some of my previous posts that regular bowel issues are something PALS consistently have to deal with....
Jul 15, 20244 min read


“Ants In My Pants” Chapter 88
Were you ever told to sit still and stop fussing around? Have you ever had ants in your pants? I've never been one to sit still, but when...
Jul 8, 20245 min read


“All My Friends Are Dying “ Chapter 87
As we age, it’s inevitable that the friends we have will pass on. Our network grows smaller as we get older. Before my mom died at the...
Jul 1, 20244 min read


“My Best Father’s Day” Chapter 86
I've had 29 Father’s Days, but this year meant the most. Many fathers would say the very first Father’s Day is the most special of them...
Jun 24, 20244 min read


“What’s Your Sleep Number?” Chapter 85
When I was diagnosed with ALS, I never thought Laura and I would be separated. Since Laura and I have been together, I have always slept...
Jun 17, 20244 min read


“1, 2, 3 Strikes ALS Is Out” Chapter 84
“Hey Laura, we just got an invite to the Nats vs Mets game. Let’s go!” Easier said than done, but I sent a response back thanking Tara...
Jun 10, 20244 min read


“Self Driving Wheelchair?” Chapter 83
Who needs a Tesla when you can have a hands free, ragtop wheelchair? This sweet ride comes complete with a computer dashboard, front and...
Jun 3, 20245 min read


“Singing In The Rain” Chapter 82
A few weeks ago I was texting with a friend and she said, “I’m sorry I haven’t come over to visit, but it’s hard for me to see you like...
May 27, 20243 min read


“Parenting With ALS” Chapter 81
When I was a child I walked to school uphill both ways. Seriously! After my mom left, I really didn’t get corrected or punished by my dad...
May 20, 20244 min read


“Morning Paper and A Cup Of Coffee” Part 2 Chapter 80
**Please read part 1 chapter 79 before reading below. If you didn't, well, this will be like listening to a country song backwards. The...
May 13, 20244 min read


“Morning Paper and A Cup Of Coffee” Part 1 Chapter 79
He was in his study as he does every morning, sitting in his favorite brown leather wing back chair. The chair has been his companion for...
May 6, 20246 min read


“Good Morning David “ Chapter 78
“Good morning, David, how did you sleep?” I hear this every morning at 10am when one of my nurses comes in to start my day. For the past...
Apr 29, 20244 min read


“The Beauty of ALS” Chapter 77
If I said every day was great and sunny in my life, I’d be lying. The simple fact is that some days are cloudy. It doesn’t matter if it’s...
Apr 22, 20244 min read


“Clowning Around “ Chapter 76
The first time I went a circus I was 12, and I will never forget it. Ringling Brothers and Barnum & Baileys Three Ring Circus with all...
Apr 15, 20244 min read
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