“ Yeah, Here We Go!” Chapter 65
If you watched football this season or follow me on Facebook, you know the Dallas Quarterback pre-snap cadence includes the phrase “Yeah,...
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Current ALSFRS-R 2
Updates From David
Rated 5 out of 5 stars.(2)
Jan 154 min read
“PEG Or MIC-KEY “ Chapter 64
I was thinking of what to write this week when I realized I have written about using my feeding tube a little, but not enough to answer...
Jan 44 min read
“I Got A New Car “ Chapter 63
It feels great when you buy a new car, but when you drive it off the lot it has already started to depreciate. Then we drive the car home...
Dec 25, 20233 min read
Merry Christmas “ Chapter 62“
‘Twas the night before Christmas and all through the house, only the ventilator was stirring as PALS breathed through his mouth. The...
Dec 18, 20234 min read
“A Walk In My Shoes“ Chapter 61
It really bothers me when I miss a week blogging. It’s not because I don’t want to write, but sometimes I can’t think of a topic....
Dec 11, 20235 min read
“Snake Oil“ Chapter 60
Have you ever heard of the term snake oil? IAW Wikipedia, “Snake oil is a term used to describe deceptive marketing, health care fraud or...
Nov 27, 20234 min read
“ Bumps In The Road “ Chapter 59
Being a PALS who lives at home, you can expect some bumps in the road with steep learning curves. I'm sure even say a PALS in a medical...
Nov 20, 20231 min read
“A Caregiver Story“ Chapter 58”
If you know a caregiver then you also know they don’t have a lot of time to themselves. So asking them to do something outside of their...
Nov 13, 20234 min read
“Living in a Conscious Sedated World “ Chapter 57
Imagine being fully aware of your surroundings with the ability to feel everything and not able to communicate what you are feeling....
Nov 6, 20233 min read
“A Special Birthday“ Chapter 56
I was reading a post the other day and a PALS asked, “How can I show my appreciation and help my caregiver?” He further stated, “I used...
Oct 30, 20234 min read
“ Daddy Read Me A Story “ Chapter 55”
Last year, as I was losing my ability to speak, my daughter realized she might miss out on learning who her dad is. Before ALS, I'd...
Oct 23, 20233 min read
“Seasons” Chapter 54
Looking out my windows, I can always tell the season by the large Beachwood tree - the center piece of our backyard. Its smooth, light...
Oct 16, 20233 min read
“Walk With Me” Chapter 53
On 14 October, hundreds of people gathered together on the Mall in DC to bring awareness to Unlock ALS Of those involved, over 20 of the...
Oct 9, 20233 min read
“The More You Know “ Chapter 52
When I was told I might have a motor neuron disease (ALS) the first thing I did was look on the internet. That was my first mistake. I...
Sep 25, 20234 min read
“Suits Up” Chapter 51
Last year I had a dream that I was playing a card game with some friends. rt was a pretty normal dream with one exception... I had never...
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