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Current ALSFRS-R 2
Updates From David
Apr 1, 20243 min read
“You Lift Me Up” Chapter 74
It was not long after being diagnosed with ALS that I needed assistance getting up to my feet. When I was sitting on the couch, Laura...
Mar 25, 20243 min read
“Darius” Chapter 73
“Please cover my arms I am cold,” Darius said in his digital voice coming out of the Tobi Dynavox. Darius is the voice I chose to use out...
Mar 18, 20244 min read
“Thanks For The Memories” Chapter 72
What have you done for yourself lately? It’s important to allow yourself time/things too. It is very easy to get caught up in our lives...
Mar 11, 20244 min read
“Sometimes The Answer Is No” Chapter 71
Have you ever prayed to God and wondered if he hears you? Has he ever answered your prayers? Has he ever not answered your prayers? When...
Mar 4, 20244 min read
“Rock, Paper, Scissors" Chapter 70
I started this blog to share what ALS really looked like, and to prepare PALS/CALS with their journey. WARNING no pictures this week,...
Feb 26, 20244 min read
“The Little Things “ Chapter 69
Do you appreciate the little things? Or do you focus on the trophies on the wall? Beginning a little over a month ago, a bird started...
Feb 19, 20248 min read
“Ask Me Anything The Answers ” Chapter 68
I love that I'm still able to still help others. Just because I am living with ALS and can’t wipe my own ass doesn’t mean I am not...
Feb 12, 20244 min read
“A Dream Within A Dream…“ Chapter 67
Have you ever had a dream within a dream within a dream? I have been having a lot of dreams lately where I see myself moving my arms and...
Feb 9, 20241 min read
Ask Me Anything
At the bottom of my page I have a section where you can ask me anything. Because this may have been missed I am sending out this little...
Jan 29, 20244 min read
” I Need A Tracheostomy, But I’m Scared “ Chapter 66
When I first started having difficulty breathing, I trusted the doctors to tell me what to do. It was around June 2022 that my ALS was...
Jan 22, 20243 min read
“ Yeah, Here We Go!” Chapter 65
If you watched football this season or follow me on Facebook, you know the Dallas Quarterback pre-snap cadence includes the phrase “Yeah,...
Jan 15, 20244 min read
“PEG Or MIC-KEY “ Chapter 64
I was thinking of what to write this week when I realized I have written about using my feeding tube a little, but not enough to answer...
Jan 4, 20244 min read
“I Got A New Car “ Chapter 63
It feels great when you buy a new car, but when you drive it off the lot it has already started to depreciate. Then we drive the car home...
Dec 25, 20233 min read
Merry Christmas “ Chapter 62“
‘Twas the night before Christmas and all through the house, only the ventilator was stirring as PALS breathed through his mouth. The...
Dec 18, 20234 min read
“A Walk In My Shoes“ Chapter 61
It really bothers me when I miss a week blogging. It’s not because I don’t want to write, but sometimes I can’t think of a topic....
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