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Current ALSFRS-R 2
Updates From David
Dec 11, 20235 min read
“Snake Oil“ Chapter 60
Have you ever heard of the term snake oil? IAW Wikipedia, “Snake oil is a term used to describe deceptive marketing, health care fraud or...
Nov 27, 20234 min read
“ Bumps In The Road “ Chapter 59
Being a PALS who lives at home, you can expect some bumps in the road with steep learning curves. I'm sure even say a PALS in a medical...
Nov 20, 20231 min read
“A Caregiver Story“ Chapter 58”
If you know a caregiver then you also know they don’t have a lot of time to themselves. So asking them to do something outside of their...
Nov 13, 20234 min read
“Living in a Conscious Sedated World “ Chapter 57
Imagine being fully aware of your surroundings with the ability to feel everything and not able to communicate what you are feeling....
Nov 6, 20233 min read
“A Special Birthday“ Chapter 56
I was reading a post the other day and a PALS asked, “How can I show my appreciation and help my caregiver?” He further stated, “I used...
Oct 30, 20234 min read
“ Daddy Read Me A Story “ Chapter 55”
Last year, as I was losing my ability to speak, my daughter realized she might miss out on learning who her dad is. Before ALS, I'd...
Oct 23, 20233 min read
“Seasons” Chapter 54
Looking out my windows, I can always tell the season by the large Beachwood tree - the center piece of our backyard. Its smooth, light...
Oct 16, 20233 min read
“Walk With Me” Chapter 53
On 14 October, hundreds of people gathered together on the Mall in DC to bring awareness to Unlock ALS Of those involved, over 20 of the...
Oct 9, 20233 min read
“The More You Know “ Chapter 52
When I was told I might have a motor neuron disease (ALS) the first thing I did was look on the internet. That was my first mistake. I...
Sep 25, 20234 min read
“Suits Up” Chapter 51
Last year I had a dream that I was playing a card game with some friends. rt was a pretty normal dream with one exception... I had never...
Sep 18, 20234 min read
“Daddy’s Girls” Chapter 50
Laura and I have been together over 28 years. I’m still not sure how she got so lucky. Over the years we’ve been apart many times either...
Sep 11, 20233 min read
“Blogaversary” Chapter 49
It’s our anniversary, our anniversary, anniversary! 🎵🎶🎵 One year ago I started this blog, but it was not as simple as it may seem. To...
Sep 4, 20233 min read
“Let There Be Light “ Chapter 47
I'm sure everyone reading this blog will wake up, turn on the lights, go to the kitchen, plug in the toaster, set the coffee pot, and...
Aug 28, 20234 min read
“56” Chapter 46
I was born into a poor family with 10 kids. No... no, wait, wrong story. The date was 14 August. It was a cold, wet Monday morning when a...
Aug 21, 20233 min read
“My First Tattoo “ Chapter 45
I'm 56 years old. I served 21 years in the Army. I enjoy looking at tattoos, so you would think for sure I would have at least one. But I...
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