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Current ALSFRS-R 2
Updates From David
Oct 30, 20234 min read
“ Daddy Read Me A Story “ Chapter 55”
Last year, as I was losing my ability to speak, my daughter realized she might miss out on learning who her dad is. Before ALS, I'd...
Oct 23, 20233 min read
“Seasons” Chapter 54
Looking out my windows, I can always tell the season by the large Beachwood tree - the center piece of our backyard. Its smooth, light...
Oct 16, 20233 min read
“Walk With Me” Chapter 53
On 14 October, hundreds of people gathered together on the Mall in DC to bring awareness to Unlock ALS Of those involved, over 20 of the...
Oct 9, 20233 min read
“The More You Know “ Chapter 52
When I was told I might have a motor neuron disease (ALS) the first thing I did was look on the internet. That was my first mistake. I...
Sep 25, 20234 min read
“Suits Up” Chapter 51
Last year I had a dream that I was playing a card game with some friends. rt was a pretty normal dream with one exception... I had never...
Sep 18, 20234 min read
“Daddy’s Girls” Chapter 50
Laura and I have been together over 28 years. I’m still not sure how she got so lucky. Over the years we’ve been apart many times either...
Sep 11, 20233 min read
“Blogaversary” Chapter 49
It’s our anniversary, our anniversary, anniversary! 🎵🎶🎵 One year ago I started this blog, but it was not as simple as it may seem. To...
Sep 4, 20233 min read
“Let There Be Light “ Chapter 47
I'm sure everyone reading this blog will wake up, turn on the lights, go to the kitchen, plug in the toaster, set the coffee pot, and...
Aug 28, 20234 min read
“56” Chapter 46
I was born into a poor family with 10 kids. No... no, wait, wrong story. The date was 14 August. It was a cold, wet Monday morning when a...
Aug 21, 20233 min read
“My First Tattoo “ Chapter 45
I'm 56 years old. I served 21 years in the Army. I enjoy looking at tattoos, so you would think for sure I would have at least one. But I...
Aug 14, 20234 min read
“Little brother” Chapter 44
Recently my daughter asked me about some of my favorite childhood memories. Looking back, I would have to say that I loved being a little...
Aug 7, 20233 min read
“FCK ALS” Chapter 43
I was diagnosed with ALS in May 2022, and by August I had participated in my first ALS CEO Soak. That October was my first ALS Walk and...
Jul 31, 20233 min read
“Fresh” Chapter 42
The Urban Dictionary for the word Fresh is: Cool, or how someone carrys themselves; how well dressed and fashionable a person is. For an...
Jul 27, 20232 min read
“F&@king Jupiter ‘ Guest Writer
October 2022 was the last time Laura and I took a road trip and it was to see my sister in Syracuse NY. This was Laura’s first time to...
Jul 24, 20232 min read
“I Am Not Average ” Chapter 41
I want to start this post with an apology for missing the past two weeks, the simple fact is this shit is hard. It is getting difficult...
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