“Take Me Out To The Ball Game” Chapter 37

Three weeks ago we were invited to the Washington Nationals baseball game. The ALS Association had a suite set up for the game. Thanks to MLB, each year every team hosts a Lou Gehrig night in his honor to bring awareness to ALS. So of course I said yes, to the invitation. Right after I sent my response, though, I had to start my 6 P’s from chapter 26.

Gone are the days where I can just "get up and go." First we needed to figure out parking. Is it close by have? Does it have handicap parking? What are the height restrictions? If it’s too far, I will have to navigate my wheelchair through possibly uneven ground and traffic. If there's no handicap parking, then we'll need to figure out where to deploy the ramp . Our van is 78 inches high, so we need to check out the parking structure .

Next is security at the park. We need to bring lifesaving equipment - suction machine and ventilator. We also need supplies like food, medical supplies, trachea replacement if mine fails, urinal since I can’t stand, and other items.  What gate do I need to go through with my wheelchair and equipment?

I can’t just mosey up to the urinal in my wheelchair with Laura helping me in the men's room. So once in the park we need to ensure there is a restroom we can use. However, I’m not shy anymore, I’ve had more strangers wipe my ass then ever before, and if I have to ask a stranger for help, I will. The question is, though, what would you do if I rolled up and asked? I guess I could slip on my depends and drive on, but I’m not sure if many people will appreciate that.

Off we went, all checks complete, and tickets in hand for our date night to see the Nats play Philly. Joining us was a dear friend Cynthia whose dad also has ALS. I planned for a 40 minute drive that took an hour with traffic. We finally got to the garage with height limit of 98 inches and drove right into a handicap spot with plenty of room for the ramp. First hurdle done.

With a short walk to the park, we enjoyed the electricity in the air. Street performers, vendors, bars, and the crowd. Not once did I need to worry about people in my way as the crowd respected the chair. Little did they know that I would use anyone who got in the way as a speed bump. As we approached the ADA line, we were allowed to cut in by the crowd. Security was on top of their game informing guests that their bags were too big or other issues to guest in front and behind us. But when we approached with all our gear in hand, they opened the gate and let us right in. We even had a cake Cynthia donated from her Nothing Bunt Cake store (Springfield and Woodbridge Virginia locations). Side note: I love their cakes and you should get some the next time you need a cake.

With security behind us, off we went to find our suite. I have to say that Nats stadium is set up really well and easily to navigate and the staff are very friendly and helpful. Only one wrong turn and we arrived at the suite. Right behind home plate on the third base side the view was perfect. With in- and outdoor seating, it was perfect for my wheelchair needs. All you can eat and drink with an on-suite bathroom large enough for my wheelchair, our final concern was answered.

We settled in to watch a great game - the Nats won 7-8. However, meeting our new friends was even better. Members from the ALS Association, sponsors, and fellow PALS was a blessing. I met Brooke, who was diagnosed in 2018 at the age of 30, she is a legend on Tik-Tok and Instagram, teaching others about ALS through her journey. (@limpbrookeskit). As we were speaking with Brooke, we found out that Dominique my daughter already follows her. Such a small world, and the ALS community is even smaller. My boss from USCP was also at the game, and made his way into the suite to say hi. We even had a visit from Screech, who took the time to take pictures with us.

I have to say, the best part of the night was seeing the caregivers and loved ones of the PALS smile and laugh. They were able to let their hair down, root for the home team, and know that their PALS was in a safe environment. Watching them be able to break away was PRICELESS..

All in all, it was a great night. Once again, with proper planning, anything is possible for PALS living with ALS. I encourage you to get out there. Don’t get stuck in your house. Spend your time enjoying life and demonstrate to others the “can do” attitude.

If I can go to a ball game with all of the potential issues, what’s stopping you?

Love and Blessings