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Current ALSFRS-R 2
Updates From David
May 8, 20233 min read
“The View” Chapter 33
I open my eyes as the sun warms my face. Laura opens the shades and I gaze upon my backyard through the windows that surround me. I’ve...
May 1, 20234 min read
“Adaptive Housing” Chapter 32
Whether you have ALS or another diagnosis with ADA requirements, adaptations to your home are inevitable. When I was first diagnosed, I...
Apr 24, 20232 min read
Poems Chapter 31
I hope this compilation of my poems find a place in your heart. "Caregiver" is from the viewpoint of the caregiver. "FCKALS" viewpoint of...
Apr 17, 20236 min read
“Priceless” Chapter 30
As my heart grows full, my body grows stronger. It’s funny to say that when ALS is literally making my body weaker. Over the past year,...
Apr 10, 20237 min read
“Gardening For Life” Chapter 29
Have you ever eaten something fresh from a garden and wondered why the exact same store-bought item disappoints? The last few weekends I...
Apr 3, 20235 min read
“The Caregiver” Chapter 28
What does it take to be a caregiver? Your life! ALSAmyotrophic lateral sclerosis (ALS), caregivers serve as nurse, nutritionist,...
Mar 27, 20235 min read
“Tortoise and the Hare” Chapter 27
On your mark, get set, GO! My mind races out of the starting block like the Hare, thinking and running, but my body lays still - moving...
Mar 20, 20236 min read
The six P’s Chapter 26
Prior Planning Prevents Piss Poor Performance (6 P’s). I am sure you've heard this before, but why do we fail to actually do this? When I...
Mar 13, 20235 min read
“Living a Purposeful Life” Chapter 25
Are you living with a purpose or just living? For some people, purpose is connected to vocation and meaningful, satisfying work. For...
Mar 6, 20233 min read
“Dreams” Chapter 24
For a very long time I had a recurring dream where I was in the basement of a house. In the basement were long dark corridors with doors...
Feb 27, 20233 min read
“9” Chapter 23
When I was a young man, the ladies call me a "9." I was happy with that. After all, a 9/10 is pretty hot. Now that’s of course assuming...
Feb 20, 20234 min read
“My Death Letter” Chapter 22
Recently I was watching "Special Forces" (a training TV show with celebrities) and "Seal Team." In both shows they wrote their death...
Feb 13, 20236 min read
“Answering God’s Call” Chapter 21
How does your faith help you deal with the challenge of ALS? I have limited memories of going to church with my family when I was a...
Feb 8, 20231 min read
2023 CEO Soak.
https://donate.dc.als.org/fundraiser/4429814 Last year with the help of many friends and family I was able to raised over $17,000 in two...
Feb 6, 20235 min read
“Getting To Know Me” Chapter 20
We die twice once when we leave our bodies and the second time when the last person who knew you dies. I thought it would be interesting...
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