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Current ALSFRS-R 2
Updates From David
Jun 35 min read
“Self Driving Wheelchair?” Chapter 83
Who needs a Tesla when you can have a hands free, ragtop wheelchair? This sweet ride comes complete with a computer dashboard, front and...
May 273 min read
“Singing In The Rain” Chapter 82
A few weeks ago I was texting with a friend and she said, “I’m sorry I haven’t come over to visit, but it’s hard for me to see you like...
May 204 min read
“Parenting With ALS” Chapter 81
When I was a child I walked to school uphill both ways. Seriously! After my mom left, I really didn’t get corrected or punished by my dad...
May 134 min read
“Morning Paper and A Cup Of Coffee” Part 2 Chapter 80
**Please read part 1 chapter 79 before reading below. If you didn't, well, this will be like listening to a country song backwards. The...
May 66 min read
“Morning Paper and A Cup Of Coffee” Part 1 Chapter 79
He was in his study as he does every morning, sitting in his favorite brown leather wing back chair. The chair has been his companion for...
Apr 294 min read
“Good Morning David “ Chapter 78
“Good morning, David, how did you sleep?” I hear this every morning at 10am when one of my nurses comes in to start my day. For the past...
Apr 224 min read
“The Beauty of ALS” Chapter 77
If I said every day was great and sunny in my life, I’d be lying. The simple fact is that some days are cloudy. It doesn’t matter if it’s...
Apr 154 min read
“Clowning Around “ Chapter 76
The first time I went a circus I was 12, and I will never forget it. Ringling Brothers and Barnum & Baileys Three Ring Circus with all...
Apr 112 min read
Special Edition “Lunch Is Served”
Over the last two years writing my blog I have met wonderful people who have all helped me in many ways. This post I want to highlight a...
Apr 82 min read
“My Guardian Angel” Chapter 75
“The Bush of Life” Chapter 75 When I was six years old, my mother left my dad and five kids ranging from 6-18 for another man. We didn’t...
Apr 13 min read
“You Lift Me Up” Chapter 74
It was not long after being diagnosed with ALS that I needed assistance getting up to my feet. When I was sitting on the couch, Laura...
Mar 253 min read
“Darius” Chapter 73
“Please cover my arms I am cold,” Darius said in his digital voice coming out of the Tobi Dynavox. Darius is the voice I chose to use out...
Mar 184 min read
“Thanks For The Memories” Chapter 72
What have you done for yourself lately? It’s important to allow yourself time/things too. It is very easy to get caught up in our lives...
Mar 114 min read
“Sometimes The Answer Is No” Chapter 71
Have you ever prayed to God and wondered if he hears you? Has he ever answered your prayers? Has he ever not answered your prayers? When...
Mar 44 min read
“Rock, Paper, Scissors" Chapter 70
I started this blog to share what ALS really looked like, and to prepare PALS/CALS with their journey. WARNING no pictures this week,...
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