“Good Morning David “ Chapter 78
“Good morning, David, how did you sleep?” I hear this every morning at 10am when one of my nurses comes in to start my day. For the past...
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Current ALSFRS-R 2
Updates From David
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Apr 224 min read
“The Beauty of ALS” Chapter 77
If I said every day was great and sunny in my life, I’d be lying. The simple fact is that some days are cloudy. It doesn’t matter if it’s...
Apr 154 min read
“Clowning Around “ Chapter 76
The first time I went a circus I was 12, and I will never forget it. Ringling Brothers and Barnum & Baileys Three Ring Circus with all...
Apr 112 min read
Special Edition “Lunch Is Served”
Over the last two years writing my blog I have met wonderful people who have all helped me in many ways. This post I want to highlight a...
Apr 82 min read
“My Guardian Angel” Chapter 75
“The Bush of Life” Chapter 75 When I was six years old, my mother left my dad and five kids ranging from 6-18 for another man. We didn’t...
Apr 13 min read
“You Lift Me Up” Chapter 74
It was not long after being diagnosed with ALS that I needed assistance getting up to my feet. When I was sitting on the couch, Laura...
Mar 253 min read
“Darius” Chapter 73
“Please cover my arms I am cold,” Darius said in his digital voice coming out of the Tobi Dynavox. Darius is the voice I chose to use out...
Mar 184 min read
“Thanks For The Memories” Chapter 72
What have you done for yourself lately? It’s important to allow yourself time/things too. It is very easy to get caught up in our lives...
Mar 114 min read
“Sometimes The Answer Is No” Chapter 71
Have you ever prayed to God and wondered if he hears you? Has he ever answered your prayers? Has he ever not answered your prayers? When...
Mar 44 min read
“Rock, Paper, Scissors" Chapter 70
I started this blog to share what ALS really looked like, and to prepare PALS/CALS with their journey. WARNING no pictures this week,...
Feb 264 min read
“The Little Things “ Chapter 69
Do you appreciate the little things? Or do you focus on the trophies on the wall? Beginning a little over a month ago, a bird started...
Feb 198 min read
“Ask Me Anything The Answers ” Chapter 68
I love that I'm still able to still help others. Just because I am living with ALS and can’t wipe my own ass doesn’t mean I am not...
Feb 124 min read
“A Dream Within A Dream…“ Chapter 67
Have you ever had a dream within a dream within a dream? I have been having a lot of dreams lately where I see myself moving my arms and...
Feb 91 min read
Ask Me Anything
At the bottom of my page I have a section where you can ask me anything. Because this may have been missed I am sending out this little...
Jan 294 min read
” I Need A Tracheostomy, But I’m Scared “ Chapter 66
When I first started having difficulty breathing, I trusted the doctors to tell me what to do. It was around June 2022 that my ALS was...
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