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Current ALSFRS-R 2
Updates From David


Aug 12, 20241 min read
"Never A Bad Day” Chapter 93
In life there are certain people you meet who become part of your family. Throughout your journey there will be unforgettable moments...


Aug 5, 20244 min read
“I Lost Power, Now What 😱” Chapter 92
"Beep, beep, beep" - the alarm to my ventilator was alarming. It was 10:00PM and I was laying in bed. Laura jumped up to see what it was....


Jul 29, 20242 min read
“Help Me, Help Them“ Chapter 91
Every 90 minutes a person in this country is diagnosed with ALS, and every 90 minutes another person will lose their battle against this...


Jul 22, 20243 min read
“Do What With My Feedings Tube?” Chapter 90
A PEG feeding tube insertion is the placement of a feeding tube through the skin and the stomach wall. It goes directly into the stomach....


Jul 15, 20244 min read
“I Needed A CT Scan, Do You?” Chapter 89
You may already know from reading some of my previous posts that regular bowel issues are something PALS consistently have to deal with....


Jul 8, 20245 min read
“Ants In My Pants” Chapter 88
Were you ever told to sit still and stop fussing around? Have you ever had ants in your pants? I've never been one to sit still, but when...


Jul 1, 20244 min read
“All My Friends Are Dying “ Chapter 87
As we age, it’s inevitable that the friends we have will pass on. Our network grows smaller as we get older. Before my mom died at the...


Jun 24, 20244 min read
“My Best Father’s Day” Chapter 86
I've had 29 Father’s Days, but this year meant the most. Many fathers would say the very first Father’s Day is the most special of them...


Jun 17, 20244 min read
“What’s Your Sleep Number?” Chapter 85
When I was diagnosed with ALS, I never thought Laura and I would be separated. Since Laura and I have been together, I have always slept...


Jun 10, 20244 min read
“1, 2, 3 Strikes ALS Is Out” Chapter 84
“Hey Laura, we just got an invite to the Nats vs Mets game. Let’s go!” Easier said than done, but I sent a response back thanking Tara...


Jun 3, 20245 min read
“Self Driving Wheelchair?” Chapter 83
Who needs a Tesla when you can have a hands free, ragtop wheelchair? This sweet ride comes complete with a computer dashboard, front and...


May 27, 20243 min read
“Singing In The Rain” Chapter 82
A few weeks ago I was texting with a friend and she said, “I’m sorry I haven’t come over to visit, but it’s hard for me to see you like...

May 20, 20244 min read
“Parenting With ALS” Chapter 81
When I was a child I walked to school uphill both ways. Seriously! After my mom left, I really didn’t get corrected or punished by my dad...


May 13, 20244 min read
“Morning Paper and A Cup Of Coffee” Part 2 Chapter 80
**Please read part 1 chapter 79 before reading below. If you didn't, well, this will be like listening to a country song backwards. The...


May 6, 20246 min read
“Morning Paper and A Cup Of Coffee” Part 1 Chapter 79
He was in his study as he does every morning, sitting in his favorite brown leather wing back chair. The chair has been his companion for...
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