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Current ALSFRS-R 2
Updates From David


“Flat David “ Chapter 119
As I was looking through Facebook, I came across a picture of a boy holding up a “Flat Stanley." “Flat Stanley" refers to a young boy...
Feb 173 min read


“Time For A Tracheostomy Tube Change.” Chapter 118
When you own a home there are certain seasonal things you must do ever year depending on where you live. Most folks follow Daylight...
Feb 103 min read


“Nursing ALS” Chapter 117
There comes a point when every PALS will need help. There are several choices you can make. When I first started showing symptoms, my...
Feb 34 min read


“ALS Things That Make You Say Hmmm!” Chapter 116
I like, no... I love being an ALS advocate and helping others understand this diagnosis. When faced with any disease, reading about it...
Jan 273 min read


“A Day Off From ALS” Chapter 115
Nobody can be “ON” every day. Most people work 40 hour weeks and many work more than 40. Before joining the Army, I worked with my dad as...
Jan 205 min read


“My ALS Mantra” Chapter 114
I AM STRONG ! I HAVE FAITH ! I AM HEALING ! Why do Athletes picture themselves performing their necessary task in their mind before the...
Jan 134 min read


“Palliative Care, What?" 😱 Chapter 113
“When you are ready, we are here to assist you with your transition.” Transition? WTF? This was one of the first things I was asked 2 1/2...
Jan 63 min read


‘My ALS Calendar” Chapter 112
As we close the chapter on another year and a new year begins, we often set our focus on new goals. Maybe you plan to eat better, save...
Dec 30, 20243 min read


“Merry Christmas” Chapter 111
I love the holiday season - starting with Thanksgiving and all the way through to New Year’s. People in general seem happier during this...
Dec 23, 20243 min read


“AI Gave Me My Voice Back” Chapter 110
Two years ago was the last time anyone heard my voice coming out of my own mouth, and it’s been even longer - another 6 months, in fact -...
Dec 16, 20244 min read
No Post
Due technical laziness there will be no post this week. I am always in need of topics, so please feel free to drop a suggestion. Have a...
Dec 9, 20241 min read


“ALS Is So Drooling” Chapter 109
There are many reasons a person gets ALS, but the disease puts us all into two groups: Bulbar (Upper Motor Neuron Disease) which starts...
Dec 2, 20243 min read


“ALS Eyes, There Watching You“ Chapter 108
Slowly, ALS continues to eat the nerves away. Unable to fulfill its unsatiable hunger, the disease reaches higher and higher, leaving me...
Nov 25, 20243 min read


“Melting Away” Chapter 107
As I sit here every day watching the muscles melt away from my body, all I can see is destruction of all the work I did throughout my...
Nov 18, 20243 min read


“The Walking Dead” Chapter 106
The other day I was working on a project and was asked to provide a verification letter from a medical professional verifying I had ALS....
Nov 11, 20243 min read
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