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Current ALSFRS-R 2
Updates From David
Sep 95 min read
“PALS With Pets” Chapter 97
I love having pets, and over the years, I have had lots of them. There have been many family pets, but the first pets that were my...
Sep 61 min read
Walk To Defeat ALS With Mission DuBois
CAN YOU BELIEVE YOU ALMOST MISSED IT? I GOT YOUR SIX! JUST READ AND SIGN UP BELOW. I WANT YOU 🫵 on my team for the ALS Walk on...
Sep 26 min read
“A 1,000 Ways To Die” Chapter 96
Psalm 121:5-8 “The Lord watches over you — the Lord is your shade at your right hand; the sun will not harm you by day, nor the moon by...
Aug 263 min read
“My ALS Foot Drop Solution” Chapter 95
Having Bulbar ALS most of my issues were in the upper neuron areas initially so I didn’t deal with limb issues at first. However, as my...
Aug 193 min read
“Living As An ALS Advocate” Chapter 94
When I retired, one of the first things I did was change my LinkedIn work title. First, though, I had to had to narrow down my options:...
Aug 121 min read
"Never A Bad Day” Chapter 93
In life there are certain people you meet who become part of your family. Throughout your journey there will be unforgettable moments...
Aug 54 min read
“I Lost Power, Now What 😱” Chapter 92
"Beep, beep, beep" - the alarm to my ventilator was alarming. It was 10:00PM and I was laying in bed. Laura jumped up to see what it was....
Jul 292 min read
“Help Me, Help Them“ Chapter 91
Every 90 minutes a person in this country is diagnosed with ALS, and every 90 minutes another person will lose their battle against this...
Jul 223 min read
“Do What With My Feedings Tube?” Chapter 90
A PEG feeding tube insertion is the placement of a feeding tube through the skin and the stomach wall. It goes directly into the stomach....
Jul 154 min read
“I Needed A CT Scan, Do You?” Chapter 89
You may already know from reading some of my previous posts that regular bowel issues are something PALS consistently have to deal with....
Jul 85 min read
“Ants In My Pants” Chapter 88
Were you ever told to sit still and stop fussing around? Have you ever had ants in your pants? I've never been one to sit still, but when...
Jul 14 min read
“All My Friends Are Dying “ Chapter 87
As we age, it’s inevitable that the friends we have will pass on. Our network grows smaller as we get older. Before my mom died at the...
Jun 244 min read
“My Best Father’s Day” Chapter 86
I've had 29 Father’s Days, but this year meant the most. Many fathers would say the very first Father’s Day is the most special of them...
Jun 174 min read
“What’s Your Sleep Number?” Chapter 85
When I was diagnosed with ALS, I never thought Laura and I would be separated. Since Laura and I have been together, I have always slept...
Jun 104 min read
“1, 2, 3 Strikes ALS Is Out” Chapter 84
“Hey Laura, we just got an invite to the Nats vs Mets game. Let’s go!” Easier said than done, but I sent a response back thanking Tara...
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