top of page
Current ALSFRS-R 2
Updates From David


“Book Club “ Chapter 152
Have you ever plunged into a novel with your book club, emerging with a storm of questions about that shocking plot twist or lingering cliffhanger? The ensuing debates dissecting character motivations, speculating on endings, and exchanging personal takeaways are often the best part. But imagine bypassing the guesswork and directing those queries right to the author? That's the magic I bring to my book. When a book club contacts me for a meet-and-greet Q&A, we set up a virtua
Nov 3, 20252 min read


“That’s Scary” Chapter 151
When I first got my tracheostomy, one of my biggest fears was choking on mucus or having something go down my esophagus. I couldn’t imagine how horrifying that would be. I was afraid to shower and definitely avoided putting anything in my mouth. I would even panic during dental cleanings if my caregiver used too much water. After battling pneumonia twice and emerging victorious, I wasn’t looking for a trilogy. Over the years I have often dreamt of drinking a cup of coffee or
Oct 27, 20252 min read


“Lords and Ladies” Chapter 150
I wrote my first chapter on 11 September 2022, an introduction titled "I Have ALS, Now What?" Now - as I write post 150 - I am amazed I made it this far. I am not talking about my living with ALS either... that’s the easy part and gives me something to write about. I’m talking about writing a post almost every Monday since. I want to thank you all for taking time to read it and respond. Some of you have been following me from day one, and others might have some catching up
Oct 13, 20252 min read


“Dry Eyes or Drool” Chapter 149
When I started the process of going down the long road of ALS, the biggest issue for me was drooling like a dog. Like most PALS I tried...
Oct 6, 20252 min read


Living To Die Or Dying To Live” Chapter 148
Someone recently asked what keeps me motivated to keep living, instead of just letting go knowing you are going to die? My answer, “If...
Sep 29, 20251 min read


“The Right Food” Chapter 147
Over the last few months I have been fixated on watching food eating challenges. Don’t laugh - I challenge you to watch a woman who’s 110...
Sep 22, 20253 min read


“Teach Change “ Chapter 146
I was going to write about something else this week, but then my wife Laura took a great video of my six month trach change and check up,...
Sep 8, 20252 min read


“Trached “ Chapter 145
I don’t know about you, but I really love when I get a text/email asking for help. Not spam or some other BS, but the kind of message...
Sep 1, 20253 min read


“For The Birds“ Chapter 144
Saying we had beautiful weather in August in Northern Virginia is rare. The temperature was in the low 80’s and the humidity was low. You...
Aug 25, 20253 min read


“Faces of Death” Chapter 143
The clock struck midnight and we moved into 2021. People were on the move again as we started to leave COVID behind us. I had been...
Aug 18, 20253 min read


“My Best Impression” Character 142
On the Fox 5 set I have always been one to volunteer. Helping others is a way I show my love, and being able to use skills that I learned...
Aug 11, 20253 min read


“Three Step Ahead” Chapter 140
Isn’t it amazing how God is always three steps ahead? When I started my journey with ALS and this blog my primary hope was to help others...
Aug 10, 20253 min read


“One Bite At A Time” Chapter 141
Are you a fiddler? Can’t seem to just relax while your mind races along? Maybe you are a multi-tasker? Before my ALS diagnosis, Laura...
Aug 4, 20254 min read


“Hospitals Suck” Chapter 139
Did I ever tell you how much I really dislike hospitals? This, of course, is only a relatively recent development over the past four...
Jul 21, 20253 min read


“What A Shit Show” Chapter 138
RE-RE-RE REMIX Let’s talk about poop baby. Let’s talk about you and me. Let’s talk about all the good things, and the bad things That...
Jul 14, 20253 min read
bottom of page