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Current ALSFRS-R 2
Updates From David


“Palliative Care, What?" 😱 Chapter 113
“When you are ready, we are here to assist you with your transition.” Transition? WTF? This was one of the first things I was asked 2 1/2...
Jan 63 min read


‘My ALS Calendar” Chapter 112
As we close the chapter on another year and a new year begins, we often set our focus on new goals. Maybe you plan to eat better, save...
Dec 30, 20243 min read


“Merry Christmas” Chapter 111
I love the holiday season - starting with Thanksgiving and all the way through to New Year’s. People in general seem happier during this...
Dec 23, 20243 min read


“AI Gave Me My Voice Back” Chapter 110
Two years ago was the last time anyone heard my voice coming out of my own mouth, and it’s been even longer - another 6 months, in fact -...
Dec 16, 20244 min read
No Post
Due technical laziness there will be no post this week. I am always in need of topics, so please feel free to drop a suggestion. Have a...
Dec 9, 20241 min read


“ALS Is So Drooling” Chapter 109
There are many reasons a person gets ALS, but the disease puts us all into two groups: Bulbar (Upper Motor Neuron Disease) which starts...
Dec 2, 20243 min read


“ALS Eyes, There Watching You“ Chapter 108
Slowly, ALS continues to eat the nerves away. Unable to fulfill its unsatiable hunger, the disease reaches higher and higher, leaving me...
Nov 25, 20243 min read


“Melting Away” Chapter 107
As I sit here every day watching the muscles melt away from my body, all I can see is destruction of all the work I did throughout my...
Nov 18, 20243 min read


“The Walking Dead” Chapter 106
The other day I was working on a project and was asked to provide a verification letter from a medical professional verifying I had ALS....
Nov 11, 20243 min read


“My Van Broke Down 😱 Now What “ Chapter 105
The year was December 1998 and Laura and I were driving from Killeen, TX to San Jose, CA with our four kids, a cat, and six suitcases. We...
Nov 4, 20248 min read


“Cut And A Shave “ Chapter 104
Before I joined the Army, I only got a haircut a couple of times a year... maybe. To be honest, I couldn’t tell you specifically where I...
Oct 28, 20245 min read


“Fading Away “ Chapter 103
“I’m sorry can you repeat that.” “Please speak louder.” “Please raise the volume.” These were all comments I used often during the day...
Oct 21, 20244 min read


“Walking For ALS” Chapter 102
It was the cool start of a beautiful fall day as the ALS Organization staff and volunteers prepared for the 1,000 + participants soon to...
Oct 14, 20243 min read


“ALS As Rare As A DeLorean?” Chapter 101
Have you ever noticed that when you are looking for something specific, it always seems to be as hard as finding a DeLorean? However,...
Oct 7, 20244 min read


“Somebody Please Change The Song“ Chapter 💯
Let me start with this... Welcome to Post # 💯! I have been thinking about writing a celebratory post for the last month. I'd even...
Sep 30, 20245 min read
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