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Current ALSFRS-R 2
Updates From David
Oct 14, 20243 min read
“Walking For ALS” Chapter 102
It was the cool start of a beautiful fall day as the ALS Organization staff and volunteers prepared for the 1,000 + participants soon to...
Oct 7, 20244 min read
“ALS As Rare As A DeLorean?” Chapter 101
Have you ever noticed that when you are looking for something specific, it always seems to be as hard as finding a DeLorean? However,...
Sep 30, 20245 min read
“Somebody Please Change The Song“ Chapter 💯
Let me start with this... Welcome to Post # 💯! I have been thinking about writing a celebratory post for the last month. I'd even...
Sep 23, 20244 min read
“Self Care To Help Care” Chapter 99
Do you remember the song “Head and Shoulders, Knees and Toes?” 🎶 Songs like that one helped us learn how to brush our teeth, comb our...
Sep 16, 20245 min read
“2, A Reflection" Chapter 98
"Do it for your children,” Laura said when I asked her who would want to read my blog. It was August 2022 and I was sitting in the...
Sep 9, 20245 min read
“PALS With Pets” Chapter 97
I love having pets, and over the years, I have had lots of them. There have been many family pets, but the first pets that were my...
Sep 6, 20241 min read
Walk To Defeat ALS With Mission DuBois
CAN YOU BELIEVE YOU ALMOST MISSED IT? I GOT YOUR SIX! JUST READ AND SIGN UP BELOW. I WANT YOU 🫵 on my team for the ALS Walk on...
Sep 2, 20246 min read
“A 1,000 Ways To Die” Chapter 96
Psalm 121:5-8 “The Lord watches over you — the Lord is your shade at your right hand; the sun will not harm you by day, nor the moon by...
Aug 26, 20243 min read
“My ALS Foot Drop Solution” Chapter 95
Having Bulbar ALS most of my issues were in the upper neuron areas initially so I didn’t deal with limb issues at first. However, as my...
Aug 19, 20243 min read
“Living As An ALS Advocate” Chapter 94
When I retired, one of the first things I did was change my LinkedIn work title. First, though, I had to had to narrow down my options:...
Aug 12, 20241 min read
"Never A Bad Day” Chapter 93
In life there are certain people you meet who become part of your family. Throughout your journey there will be unforgettable moments...
Aug 5, 20244 min read
“I Lost Power, Now What 😱” Chapter 92
"Beep, beep, beep" - the alarm to my ventilator was alarming. It was 10:00PM and I was laying in bed. Laura jumped up to see what it was....
Jul 29, 20242 min read
“Help Me, Help Them“ Chapter 91
Every 90 minutes a person in this country is diagnosed with ALS, and every 90 minutes another person will lose their battle against this...
Jul 22, 20243 min read
“Do What With My Feedings Tube?” Chapter 90
A PEG feeding tube insertion is the placement of a feeding tube through the skin and the stomach wall. It goes directly into the stomach....
Jul 15, 20244 min read
“I Needed A CT Scan, Do You?” Chapter 89
You may already know from reading some of my previous posts that regular bowel issues are something PALS consistently have to deal with....
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